Articles, Podcasts, Research, Social Media Groups, Infographics, & Books to inform, connect, and encourage those who are experiencing COVID long-hauler symptoms. Initially put together by Becky Burns and Sarah Davison-Tracy, please feel free to share with Sarah any additional information you have found helpful by emailing her the link(s) – and she will add it to the list.
In case you missed the premiere of ourSeeds Storyteller Series with Becky Burns – here is the replay of an intimate, informative, and hopeFULL conversation about being COVID “long-haulers”.
Feel free to share with anyone you know who is struggling with their health post-COVID or to simply learn more about this reality that is impacting many ’round the globe.
COVID “Long Hauler” Resource
*click on hyperlinks in dark pink font below*
Social Media Groups
Covid-19 Long Haulers Awareness and Education – Facebook
Long Haul COVID Fighters – Round 2 – Onset of illness AFTER 04/01/20 – Faceboook
Survivor Corps – Facebook and website
Survivor Corps is one of the largest and fastest growing grassroots movements connecting, supporting, educating, motivating and mobilizing COVID-19 Survivors to support all medical, scientific and academic research, help stem the tide of this pandemic and assist in the national recovery. -Survivor Corps website
Articles, Podcasts, & Research
“As Their Numbers Grow, COVID-19 ‘Long Haulers’ Stump Experts” – Article link HERE & excerpt:
The longer the pandemic drags on, the more obvious it becomes that for some patients, COVID-19 is like the unwelcome houseguest who won’t pack up and leave.
“Anecdotally, there’s no question that there are a considerable number of individuals who have a postviral syndrome that really, in many respects, can incapacitate them for weeks and weeks following so-called recovery and clearing of the virus,” Anthony Fauci, MD, director of the National Institute of Allergy and Infectious Diseases, said in July during a COVID-19 webinar organized by the International AIDS Society.
“COVID-19 ‘Long Hauler’ Symptoms Survey Report” – A Study Conducted by Dr. Natalie Lambert / Indiana University School of Medicine and Survivor Corps – Report link HERE.
“Doctors Begin to Crack Covid’s Mysterious Long-Term Effects” – Article link HERE & excerpt:
David Putrino, director of rehabilitation innovation at Mount Sinai Health System in New York City, said the majority of the more than 300 long-Covid patients being seen at its Center for Post-Covid Care appear to have developed a dysautonomia-like condition. About 90% of such patients report having symptoms of exercise intolerance, fatigue and elevated heartbeats. About 40% to 50% also report symptoms such as gastrointestinal issues, headaches and shortness of breath.
Dr. Putrino said inflammation from the virus might be disrupting the normal functioning of the vagus nerve—the body’s longest cranial nerve—which relays messages to the lungs, gut and heart.
“For This COVID-19 Long-Hauler, Talking, Breathing And Swallowing Are Still A Challenge” – Article link HERE & excerpt:
Perhaps the most confounding aspect of COVID-19 is the disease’s unpredictability.
The coronavirus affects every system of the body, including the respiratory and neurological systems and even the blood. Some patients need ventilators to breathe or have flu-like symptoms for a week or two, while others show no symptoms but shed the virus and unknowingly infect others.
And then there are the long-haulers. They gather by the thousands in online support groups as month after month goes by with little to no signs of getting better.
These patients are a mix of younger and older people whose coughing, chest tightness, shortness of breath and fatigue can last well after they test positive for the coronavirus, according to Dr. Christopher Babiuch of the Cleveland Clinic.
“Is Long Covid Hitting Women Hardest? A Doctor Weighs In” – Article link HERE & excerpt:
“The long Covid cases I have dealt with have mainly been people who were previously fit and healthy, but who after having Covid have continued to experience exhaustion, brain fog and memory issues, depression and anxiety, heart palpitations and breathlessness,” GP Dr Punam Krishan tells British Vogue. “There is sadly no cure, and there is also no way to predict how long the symptoms will go on for, which is most frustrating for patients.”
…A recent study carried out by King’s College London found that women aged between 50 and 60 are at the highest risk of developing long Covid after suffering from the virus. Interestingly, the research found that women in this age bracket were eight times more likely than 18 to 30-year-olds to endure long-term Covid symptoms.
“Post-COVID Recovery Resources” – Link HERE. Put together by the State of Washington Hospital Association.
The Science Behind How the Coronavirus Affects the Brain” – Link HERE to article & video.
New research could help explain why thousands of Covid-19 survivors are facing debilitating neurological symptoms months after initially getting sick. WSJ breaks down the science behind how the coronavirus affects the brain, and what this could mean for long-haul patients.
“Teeth Falling Out, Blurry Vision, Neurological Damage Plaguing Coronavirus Long-Haulers” – Article link HERE & excerpt:
Nearly 19 million Americans have been infected with COVID-19 since the pandemic began — a shocking number, made more disturbing by the Centers for Disease Control and Prevention’s July announcement that a third of COVID-19 patients continue to display symptoms for months after they test negative.
Diana Berrent has experienced symptoms ranging from headaches to stomach issues to glaucoma — even nine months after her March infection. Now, her 12-year-old son has developed long-hauler symptoms as well.
She’s the founder of the Survivor Corps research and support group for long-haulers and joins host Robin Young to discuss what she and researchers are finding out from the Survivor Corps members.
“‘They’re Not Actually Getting Better,’ Says Founder Of COVID-19 Long-Haulers Support Group” – Article link HERE & excerpt:
One suburban mom has been trying to tell people how serious this pandemic is since March. Diana Berrent is a COVID-19 long-hauler, which is a person who suffers from debilitating medical issues even after their tests show they no longer carry the coronavirus.
Berrent is still battling symptoms nearly seven months after experiencing her most severe illnesses with COVID-19. She says she’s seen specialist after specialist for complications with her eyesight, gastrointestinal tract and recurring headaches.
“What It Means to Be a Coronavirus ‘Long-Hauler'” – Article link HERE & excerpt:
A Q&A about lingering symptoms of COVID-19. According to one report, most people fall into one of two groups when it comes to the virus. Approximately 80% of those with COVID-19 end up having a mild response and most of those cases resolve in about two weeks. For people who have a severe response to the virus, it can take between three and six weeks to recover.But now, there is growing concern over a separate group who don’t seem to fall into either of those categories. A number of people are now reporting lingering symptoms of the illness for one, two or even three months. This new group is mixed with those who experienced both mild and severe cases.
“What It Takes to Heal From Covid-19” – Article link HERE & excerpt:
Survivors can get better, but they need help. I am one of millions of people still fighting to regain their full health months after surviving Covid-19. But this is not a story about sickness. This is a story about the small army of people who are helping me heal.
There are the pulmonologists, a team of two brilliant, brave women who have treated Covid-19 patients in the I.C.U. throughout the pandemic. One of them is around my age — early 30s.
Treatment Clinics & Resources by US City
Many cities have COVID long-hauler treatment facilities opening up. Here are a few:
- Chicago: UChicago Medicine
- Denver: Post-COVID ICU Clinic / UC Health & Respiratory Recovery Clinic / National Jewish
- New York: Center for Post-COVID Care / Mt. Sinai
- Seattle: Post COVID Telehealth Clinic / UW
- What to Expect after COVID Hospitalization (PDF)
- Common-Long-Haul-Effects (PDF)
- Printable-Practical-Tips (PDF)
Live Ablaze: And Light Up the World, by Sarah Davison-Tracy – autographed book duo or Amazon. ABOUT: If you’ve ever wondered how one person could possibly make a difference just by showing up exactly as they are (yes, even if you’re struggling and suffering from post-COVID symptoms), you’re in the right place. Welcome. Excerpt from back of book:
This is a guided and experiential journey that is both intimate and expansive, fueling you for a life that is peace-making, bridge-building, and change-making. One step at a time, get ready to uncover more of who you are and what matters most to you.
You may feel more-than-ready, eager to receive this journey’s invitation or you may feel a bit hesitant, especially if life seems overwhelming. Wherever you find yourself today, don’t wait another moment. It’s time to begin. Rather than another “to-do” in your life, Live Ablaze offers a pathway to connect with who you are and why you are here. As you explore, the glow of hope, peace, and love will stoke the flames of a life far beyond what you ever dared to dream.
Soothe the Spirit: Blessings and Rituals for Energy Enhancement, by Becky Burns. Amazon. Excerpt from book:
When you engage in expressions of love and peace, comfort and joy, and understanding and acknowledgement, you change the world. And when you take the time to honor the events of your life with rituals and acknowledge everyday blessings with gratitude, you soothe your spirit. In this motivating collection, simple ceremonies from energy healer Becky Burns help you unearth and release the thoughts that keep you from realizing your goals and will help you cultivate the energy you need to more fully enjoy your life.
Guided by the four elements-fire, earth, water, and air – Burns gives you the practical tools and encouragement you need to develop blessings, affirmations, and rituals that fit your unique situation, schedule, and personality.
She guides you through ceremonies for: Expressing gratitude to affirm life’s gifts Clearing energy, establishing intention, and expanding abundance – Reflecting on nature’s cycles – Comforting the spirit through challenges – Impacting global healing and peace. For novice and experienced seekers alike, Soothe the Spirit is your trusted guide to developing a powerful personal practice of giving thanks, focusing the mind, and nourishing your soul.
Soulfully Ablaze: A 40-Day Journey to Light Up Your Life (And the World), by Sarah Davison-Tracy – autographed book duo or Amazon. ABOUT: This 40-day journey is a radically simple—simply radical—way to fuel your life, still the noise, discover your next steps, and to connect more with others as you go (all VITAL things, especially if you are struggling with post-COVID symptoms). Excerpt from back of book:
This adventure will unleash within you a new vision for your unique ways to be a vital part of the lives of those who matter most to you in your family, neighborhood, and in far-flung parts of the world. It will amplify your purpose on the planet and help you cultivate a tribe of people that will delight and surprise you. It will fan the flame of your dormant or blazing dreams.
The timeframe of forty days is rooted in the power of both the spiritual and scientific to notably reframe, restart, and regenerate. Each day includes a reading for soulful learning and inspiration, followed by a time of simple stillness, reflection, and nudges for unique-to-you inspired action. You will have opportunities to weave these practices with ease into more bits of your life in ways that will create plentiful peace, flourishing freedom, herculean hope, and limitless love. One day at a time, your life will begin to light up with an unmistakable glow. This is where the fire of your life is stoked.
We belong to each other.
Let’s standTALL together and light up the world.
xo, -Sarah DT – Writer, Speaker, Founder – Seeds of Exchange